Providers look to Congress for essential funding to ensure 24/7 frontline support remains in place
Anthony Donatelli of Mission Viejo,
Calif., is a sports buff who enjoys going to events as a spectator and
participating in them, too. He plays rec-league baseball, soccer and
basketball, and inside this 30-year-old’s bedroom within a Bethesda home are
trophies and medals to prove his success. In early March, he was thrilled to
attend a NASCAR race, the Auto Club 400.
Down syndrome hasn’t gotten in Anthony’s
way, but concerns around the coronavirus pandemic have – keeping him from the
activities he loves. The same is true for the approximately 6 million Americans
with an intellectual or developmental disability, many of whom are more likely
to become ill with coronavirus because of their disability. They need support
of staff 24/7 to keep them safe and healthy.
As COVID-19 shows few signs of going away
soon, nonprofit service providers like Bethesda are doing all they can to
provide supplies and extra pay to heroic frontline staff – week in and week out
– all at a steep cost. “Organizations that provide necessary support may not be
sustainable for the long term without government help, and so far that has been
very limited,” said Mike Thirtle, Ph.D., president and CEO of Bethesda. “That
is why at both the federal and state levels, support is essential in the next
round of funding, to ensure people like Anthony continue to have the support
they need and deserve.”
To remedy the situation, Bethesda is
focusing attention of lawmakers on the following:
- ·A temporary 12 percent increase in the Federal Medical Assistance Percentage (FMAP) with some of the increase dedicated specifically for home and community-based services. State Medicaid programs need additional federal funds to increase rates for frontline Medicaid providers to help offset the unexpected costs associated with keeping people with disabilities safe and healthy during the COVID-19 pandemic.
- Include temporary payments to DSPs and provide frontline essential health care worker incentives to maintain the frontline workforce. Providers for people with developmental disabilities, which historically have dealt with more than a 50% turnover rate, are struggling even more to maintain a workforce during the pandemic.
- Provide funding to not-for-profits of all sizes impacted by the COVID-19 pandemic and encourage charitable giving by allowing individuals to donate now and deduct it from 2019 taxes.
- Provide federal guidance that direct support professionals (DSPs) are considered essential health care workers. Ambiguity exists as to whether DSPs are considered essential under the general definition of “health care workers” found in the CARES Act. Clarification is needed to ensure that DSPs are included under the definition.
- Expand access to personal protective equipment (PPE). The federal government must take steps to secure an expansion of protective equipment for frontline caregivers, including DSPs.
“Too often, the millions of vulnerable
people with developmental disabilities are last in line for our lawmakers,”
Thirtle said. “Now is the time for our leaders to rise up on behalf of people
with disabilities, the staff members who care for them every day, and parents
and guardians who are deeply concerned and want the best for their loved ones,”
Bethesda urges everyone to contact their Congressional representatives. To do so, visit BethesdaLC.org/AdvocateNow.
Headquartered in Watertown, Wis., Bethesda is a national organization providing homes and other services for people with intellectual and developmental disabilities, and celebrated its 115th anniversary in 2019. Bethesda strives to become a central point of connection that unites people who have disabilities with communities and provides essential resources to help them live their lives to the fullest. The organization offers more than 300 programs across the country, provided 4 million hours of support across all programs in the most recent fiscal year, and is guided by Christian faith. Visit http://www.bethesdalc.org, like our Facebook page and follow us on Twitter, LinkedIn and Instagram.